Re: New here, anyone up for the challenge of helping me? -

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Posted by denise on May 22, 202 at 17:19:28:

In Reply to: New here, anyone up for the challenge of helping me? posted by Michele on May 22, 202 at 06:56:53:

: Hi all.

: Boy, it is nice to find a knowledgable bunch of people to bounce some questions and ideas off of. Can’t find too many professionals around here who understand NLD.

: I have three children, and am expecting our fourth. 1. DD 10 years old, diagnosed ADHD, encopresis, NLD,developmental math learning disorder
: 2. DS 7 years old diagnosed with autism and developmental delay.
: 3. DD 3 years old, just classified as a preschooler with a disability no diagnosis yet, but I anticipate that she will probably be a lot like her sister as she develops.

: Anyway, needless to say, my autistic seven year old son is the easiest child to handle in the family, because he is in a great program and, the professionals dealing with him all know how to help these little guys with autism. No one has any answers on how to help my daughter though, and I am so motivated to help her, but so frustrated with not having the tools to do so.

: She has been on ritalin for about a year and a half and we see a lot of improvement on that. It is only with the medication that there is any possibility of helping her at all. Without it, I don’t think we could have made much progress, but now she is able to focus and attend better. So, now, I want to help her more.

: Mostly I am seeing ejecutive function deficit, I know for sure that is what it is. I know that it is often linked to ADHD and NLD. They are all intertwined in her, somehow. I understand behavior modification therapy, as I said, we have the meds, I need to know how to teach her to handle ejecutive function deficit. The school isn’t helping me on this level, and even if they were, I would still want to know how to help her at home with it too. She can not function in any setting that isn’t structured at least to the standards of the typical school day, lets say. Assigned seating, set schedules, set supplies for each activity, these things help her function in school, but at home and in any novel setting, she falls apart. Mind you, our home is more structured than most, our autistic son also requires structures. We don’t do surprises here, we have set schedules, not down to the minute like in school, but they know what to expect here too. It isn’t enough.

: Does anyone know of a book or website that teaches solid strategies for helping these kids with executive function deficits? All I have found is a few lists telling me to use schedules, notebooks, palm pilots, etc. That is good, for organizing homework or maybe even their time at home. I need more though, I need to really get into teaching her to cope with less structured activities, like play. She has no play skills to speak of, and I think it is because it isn’t structured. All she has ever played with are video games, which are highly structured, if you think about it. If you give her playdough or markers, she will only create something she has already seen someone else make, she doesn’t just flow with it and use her imagination. Again, I see this as her attempting to structure the play time. I want to help her get past this somewhat, but need some guidance.

: Can anyone out there help? I am willing to read any information you have found about this stuff. I hope I don’t sound too nutty, I am just very frustrated with not being able to find the right information. You would think that my child with autism would have presented me with the greatest parenting challenge of my life, but not even close. This is much harder.

: Thanks for listening, and reading my super long post. Good luck to all the other parents out there coping with these problems.

: Michele

Michele

My daughter had a complete evaluation by the Center for Developement and Learning (CDL) in Chapel Hill. They are the absolute best. There is a long wait list to get in (about 9 – 12 months) but you can get in earlier if you can be flexible enough to fill in a cancelation. The evaluation lasts the entire day and your child is one of only two children who are evaluated the entire day. It is fairly expensive (I heard $1200 ) but hopefully your insurance will cover it. I could not have asked for a more thorough exam and the entire staff was great with my daughter. I know it is a long drive but think it is well worth it.

Good Luck. Denise

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: : : Hi all.: : Boy, it is nice to find a knowledgable bunch of people to bounce some questions and ideas off of. Can’t find too many professionals around here who understand NLD.: : I have three children, and am expecting our fourth. 1. DD 10 years old, diagnosed ADHD, encopresis, NLD,developmental math learning disorder: : 2. DS 7 years old diagnosed with autism and developmental delay.: : 3. DD 3 years old, just classified as a preschooler with a disability no diagnosis yet, but I anticipate that she will probably be a lot like her sister as she develops.: : Anyway, needless to say, my autistic seven year old son is the easiest child to handle in the family, because he is in a great program and, the professionals dealing with him all know how to help these little guys with autism. No one has any answers on how to help my daughter though, and I am so motivated to help her, but so frustrated with not having the tools to do so.: : She has been on ritalin for about a year and a half and we see a lot of improvement on that. It is only with the medication that there is any possibility of helping her at all. Without it, I don’t think we could have made much progress, but now she is able to focus and attend better. So, now, I want to help her more. : : Mostly I am seeing ejecutive function deficit, I know for sure that is what it is. I know that it is often linked to ADHD and NLD. They are all intertwined in her, somehow. I understand behavior modification therapy, as I said, we have the meds, I need to know how to teach her to handle ejecutive function deficit. The school isn’t helping me on this level, and even if they were, I would still want to know how to help her at home with it too. She can not function in any setting that isn’t structured at least to the standards of the typical school day, lets say. Assigned seating, set schedules, set supplies for each activity, these things help her function in school, but at home and in any novel setting, she falls apart. Mind you, our home is more structured than most, our autistic son also requires structures. We don’t do surprises here, we have set schedules, not down to the minute like in school, but they know what to expect here too. It isn’t enough.: : Does anyone know of a book or website that teaches solid strategies for helping these kids with executive function deficits? All I have found is a few lists telling me to use schedules, notebooks, palm pilots, etc. That is good, for organizing homework or maybe even their time at home. I need more though, I need to really get into teaching her to cope with less structured activities, like play. She has no play skills to speak of, and I think it is because it isn’t structured. All she has ever played with are video games, which are highly structured, if you think about it. If you give her playdough or markers, she will only create something she has already seen someone else make, she doesn’t just flow with it and use her imagination. Again, I see this as her attempting to structure the play time. I want to help her get past this somewhat, but need some guidance. : : Can anyone out there help? I am willing to read any information you have found about this stuff. I hope I don’t sound too nutty, I am just very frustrated with not being able to find the right information. You would think that my child with autism would have presented me with the greatest parenting challenge of my life, but not even close. This is much harder.: : Thanks for listening, and reading my super long post. Good luck to all the other parents out there coping with these problems.: : Michele: Michele: My daughter had a complete evaluation by the Center for Developement and Learning (CDL) in Chapel Hill. They are the absolute best. There is a long wait list to get in (about 9 – 12 months) but you can get in earlier if you can be flexible enough to fill in a cancelation. The evaluation lasts the entire day and your child is one of only two children who are evaluated the entire day. It is fairly expensive (I heard $1200 ) but hopefully your insurance will cover it. I could not have asked for a more thorough exam and the entire staff was great with my daughter. I know it is a long drive but think it is well worth it.: Good Luck. Denise

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